ALS Association Convenes Global Community for Nexus 2026 in Orlando
When families, researchers, clinicians, and advocates align in one room, ideas accelerate and the isolation of a diagnosis fades, says Calaneet Balas, CEO of the ALS Association. This urgency defines the upcoming ALS Nexus conference, running August 23–26 at the Hyatt Regency Grand Cypress Resort in Orlando.

The four-day summit brings together the international ALS community to bridge the gap between clinical expertise and patient advocacy. With both in-person and virtual attendance options, the event aims to translate scientific breakthroughs into actionable progress for those living with the neurodegenerative disease. The program focuses on early diagnosis, genetic research, and new multidisciplinary approaches to care.
A central feature of this year’s gathering is a fireside chat on the role of hope in medical treatment, featuring actress and advocate Tabitha Brown alongside ALS Association leadership. Beyond high-level discussions, the conference addresses the practical hurdles patients face, including a dedicated session on overcoming insurance barriers and navigating the complexities of care appeals. The event also highlights the next generation of scientists, featuring insights from researchers at UC San Francisco, Johns Hopkins, and the Harvard T.H. Chan School of Public Health, and honors community members through the annual ALS Heroes awards.
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